Many people with disabilities find that online dating can be a difficult process at best. Tell me about it. (That last part was sarcasm.)
I spent six months on a popular, highly ranked online dating site without indicating in my profile that I had a disability. While my disability is nearly invisible, I walk with a cane — which is visible when I meet someone.
The first man I met online also had a disability. We dated for a couple of months and parted as friends. During the next four months, I met four other men online and in person. I told all but one of them about my disability before I met them, yet none of them asked me out on a second date.
So, I have decided to do an experiment to see if my walking with a cane has any effect on the responses I get on the online dating site. This morning, I added the following information to my online dating profile: “I walk with the help of a cane, which seems to make some men on online dating sites feel uncomfortable. If you would be uncomfortable dating a woman who uses a cane, please refrain from responding to my profile.”
I’ll let you know what happens.
July 6, 2014
On Friday, I used the WalkAide at two Independence Day celebrations — one was a luncheon and the other involved dinner, a party and a community fireworks display. I did a lot of walking outdoors on uneven ground. I was stepping up and down curbs, and as the evening wore on, I noticed I was walking more slowly.
I think I use different muscles when I walk with the WalkAide than when I walk with a brace, which causes my foot and leg to tire somewhat over time.
Saturday didn’t go well as previous days. I went shopping for clothes at a large consignment shop and followed that with a quick trip to the grocery store. I tried adjusting the location and the intensity of the device, but by the time I got to the grocery store, I felt as if I were having to concentrate on picking up my foot on every step. I was walking slowly and with difficulty.
So while my response to the WalkAide this week has been a positive one overall, I would like to work more with Todd to tweak the settings and recheck the placement of the device on my leg. I plan to ask him if I can keep the device a little longer before I decide whether to buy it. It is expensive and my insurance doesn’t cover it.
I have an appointment with Todd on Tuesday.
July 4, 2014
The WalkAide works well for me when I put it in just the right spot on my leg. But that’s not as easy as it sounds.
When I got the device for this test-drive, Todd was ever so helpful in showing me how it worked and how to wear it. He made some marks on my leg with a “permanent” Sharpie marker so I would know exactly where to put the WalkAide. But the marks on my leg wore off easily, and I have found that it is difficult to remember what its proper placement is.
Bess, a physical therapist, helped me re-mark my leg a few days ago, but between daily showers and lotion applications, twice-weekly aquatic exercise class and “glowing” in the deep South summer heat, the marks on my leg seem to fade away as soon as I look in the other direction. (Well, almost.)
If I don’t put the WalkAide on my leg in just the right place, it will stimulate a nerve other than the peroneal (and move the front part of my foot to the side instead of upward) or it will fail to stimulate any nerve at all. At a result, I have spent a lot of time just getting the device in the right place.
For those of you out there in cyberspace who have MS, you know that this problem can be especially frustrating, especially if your eyesight or your hands aren’t cooperating on a particular day.
BYE BYE BRACE, HELLO SANDALS
One of the best things about the WalkAide is that I don’t have to wear a brace anymore. Wearing a brace has a lot of downsides. In an earlier post, I mentioned that the braces I wore have weakened my ankle and reduced its range of motion.
Then there are the even more important, fashion-related concerns. For one thing, braces look best when camouflaged by clothing, such as pants or jeans. Put another way, a white plastic knee-ankle brace with a visible hinge and wide velcro fasteners is not the most stylin’ accessory with a short skirt or a pair of shorts. That’s why my closet is full of boot leg jeans and pants. If the WalkAide works for me and I purchase it, I will take a lot of those pants and jeans to consignment shops and replace them with skirts and shorts.
A brace limits one’s choice of shoes. Most of the time I wore New Balance shoes with my brace. Other footwear options include fancier shoes you can purchase in places that fit orthotics and braces. But let’s face it, these shoes and boots are not featured in fashion magazines. They are not attractive at all. And they are expensive. I have experienced problems with fit and comfort with these shoes. I found that they were difficult to put on over the brace, were uncomfortable to wear, and made walking even more difficult.
I probably have four or five pair of these kinds of shoes in a variety of colors and styles collecting dust in my closet. I haven’t exactly worn down the heels or scuffed the toes. Yee-haw, I can wear sandals and cowboy boots again!
July 2, 2014
I debuted my WalkAide at Wally World, where I went to buy shorts. I decided that while I was out, I would pick up some cat litter, which I knew Jem, my Maine coon cat, would appreciate.
As some of you may know, I live in the deep South,where almost everyone lives in shorts all summer. I hadn’t worn shorts in public for years, because I was self-conscious about my brace. So I was excited about wearing shorts again.
Leaving the house, I wore the WalkAide under a pair of jeans, where it bulged as if I had cauliflower knee. Using my cane for balance, I ambled inside the store and grabbed a shopping cart (or buggy, as we say in the South).
With six pairs of shorts in my buggy, I entered a fitting room. But trying them on wasn’t as easy as I had thought it would be. My right ankle and leg muscles felt weak after I removed the device. My foot and leg didn’t want to cooperate as tried on the shorts, but I select three denim pairs — dark blue, faded blue and white — to meet my summer wardrobe needs. On the way to the check-out counter, I grabbed a jumbo jug of cat litter and left the store feeling tired, but happy, that I hadn’t fallen or otherwise embarrassed myself.
EXERCISE CLASS AND THE GROCERY STORE
I drove across town and attended an aquatics exercise class for people who have been diagnosed with MS. I removed the WalkAide and got in the cool indoor swimming pool for the 60-minute class. I appreciated the positive feedback about my gait and walking speed that I received from classmates and the instructor. After class, when I put the device back on and walked to the locker room to change clothes, my leg felt fatigued, and changing back into my street clothes took a little longer than usual.
Getting my second wind, I drove to the grocery store and snagged the second shopping cart (buggy) of the day. I walked comfortably up and down the aisles and picked out the groceries I needed for the week.
As I loaded the car, I finally felt like I was getting the hang of wearing the WalkAide in public. The visit to the store didn’t take any longer than usual, and I didn’t notice any additional fatigue. Victory was mine! I had made it through my first full day using the WalkAide.
When I got home, I noticed some stiffness in my right ankle, and I realized I wasn’t used to walking so much without the brace, which had affected my ankle’s flexibility and range of motion. I put away the groceries, and Jem practically jumped for joy when he saw the cat liter.
PLEASE SEND ME YOUR COMMENTS
Please send me your comments about this post. Have you tried a WalkAide or other similar device? What kind of results did you have? Are you still using it? Do you have any advice or suggestions?
July 1, 2014
I have had foot drop since I was diagnosed with multiple sclerosis more than 15 years ago. This week, I’m trying something new in an attempt to improve my foot drop and gait — a medical device called a WalkAide. I will blog about my experience daily and let y’all know how it goes.
Foot drop is an interruption of the natural nerve-to-muscle communication between the brain and the leg, which inhibits one’s ability to lift the foot naturally. It can be caused by stroke, incomplete spinal cord or traumatic brain injury, cerebral palsy, or, as in my case, multiple sclerosis. According to a WalkAide marketing brochure, the device “restores this lost communication by sending electrical signals to your peroneal nerve, which controls movement in your ankle and foot.”
For the past 10 or so years, I have worn a brace on my affected leg (the right one) to improve my gait. I have had four or five braces in that time. I credit the braces for helping with my foot drop, keeping me from locking out my knee when I walk and generally stabilizing my gait. But the downside to wearing a brace is that my ankle stays in one position all day, and, as a result, I have lost significant range of movement and strength in that joint.
My right knee isn’t anything to write home about, either. I have had it scoped twice –had torn cartilage removed and a torn meniscus repaired, among other things. I am currently seeing a physical therapist in conjunction with using the WalkAide. She is helping me strengthen my ankle and some of leg muscles, including my hamstring, that have been weakened by MS.
I expect the WalkAide to improve my foot-drop and gait problems and, at the same time, to allow me to strengthen my ankle and improve its flexibility.
WHAT I’LL DO THIS WEEK
The Walk Aide is a “cuff” that is worn directly below the knee of the affected leg, which in my case is the right leg. It has two modes of operation — training and walking. I will use both modes daily.
I will sit with my right leg dangling from a seat or table for five minutes three times a day while wearing the WalkAide in the training mode. This mode is designed to “wake up” the peroneal nerve to help it respond as well as possible to the electrical stimulation from the WalkAide. In the walking mode, the device is set to produce an electrical stimulation to the peroneal mode and raise the front part of my foot at a specific point in my gait.
I will wear it daily as much as possible and see how it works in different situations. I will wear it while I am at home. And today, for example, I will wear it on my trip to the grocery store. So that’s the plan. I’ll report back daily to let you know how it goes.
Please send me your comments about foot drop and the WalkAide. Have you tried a WalkAide or other similar device? What kind of results did you have? Are you still using it? Any advice?
April 20, 2014
I posted the following on March 23, 2012, and to this day, it gets the most hits per week of anything I have posted on this blog. So, here it is again. For your enjoyment and edification:
“Your mom’n’em” is a Southern expression that refers collectively to all of someone’s family members — not only his or her mother, but his or her father, sisters, brothers, daughters, sons, cousins and distant relatives.
It’s an efficient way to inquire about the health of all of the members of a family with just one question. While the spelling of “your mom’n’em” may vary from person to person and place to place, its pronunciation doesn’t change that much. Basically, it rhymes with the word “homonym.”
“How’s your mom’n’em?” is an appropriate question to use in a variety of situations, such as seeing an old friend in the check-out line at Wal-Mart on a Saturday morning or running into an acquaintance while dining at a meat-and-three (vegetables) on Sunday after church.
Looking into other uses of this expression, I found that Clancy DuBos wrote about “The Mom-n-em Rule” in a column in the Gambit, a weekly newspaper in New Orleans,dated March 29, 2005.
DuBos wrote, “For years, candidates for public office who no longer lived in the districts they sought to represent dodged residency or domiciliary requirements by effectively claiming they lived “with mom’n’em” — that is, at some long-established (but long abandoned, by the candidate) family abode within the borders of the district, Judges traditionally used more highfalutin’ language to bless the deception, but they may as well have just gone ahead and called it ‘The Mom’n’em Rule.’
“The rule was simple: If you don’t live in a particular district, you can still run for office from that district as long as you might have lived there at one time and your mom — or some other close relative — still lives there. For at least 40 years, the Mom’n’em Rule was pretty much the law in Louisiana.
“Until Cedric Richmond came along.”
DuBos then explained that Richmond, a state representative from New Orleans, had qualified to run in a special election for a seat on the New Orleans City Council.
“In doing so, he tested even the elastic limits of the Mom’n’em Rule — so much so that the Louisiana Supreme Court last week finally found an excuse to blast the rule to hell.”
In short, the court declared Richmond to be ineligible to run for office.
If you would like to read DeBos’ column in its entirety, go to http://www.bestofneworleans.com/gambit/end-of-the-momnem-rule/Content?oid=1244052
As I have mentioned before in this blog, I am a member of an MS aquatics exercise class at Lakeshore Foundation in Birmingham, Alabama. It’s a wonderful class and support group that I believe has helped keep my MS from progressing during the 15 years since I was diagnosed.
For the seventh year in a row, the class formed a team known as the Lakeshore Splashers and participated in the Birmingham Walk MS on April 5. Most of our 13 team members have been diagnosed with MS. We worked hard this year to raise money for the National Multiple Sclerosis Society’s Alabama/Mississippi chapter.
And less than two weeks after the walk at Homewood Park, the Splashers have already collected close to $5,000 in pledges. That amount includes donations from friends and family members as well as personal contributions from team members. And the money is still coming in!
Congratulations, Splashers, and thank you for helping to make the April 5 Birmingham Walk MS a success!
NOTE: The funds raised through events such as the Birmingham Walk MS allow the Alabama/Mississippi chapter of the National MS Society to continue providing necessary support to people affected by MS. Newly diagnosed support, lending library, support groups, peer support network, and emergency financial aid are just a few examples of the programs provided by this chapter. These events also raise funds to continue cutting-edge research to help find a cure for this auto-immune disease that affects the central nervous system.
For more information about the National MS Society, how proceeds from Walk MS are used, or the other ways you can do something about MS now, visit the chapter’s website at http://www.nationalMSsociety.org/alc.